Real lives, real stories

Time for Carmela is precious, she has an aggressive rare form of Muscular Dystrophy. Her muscles are week and her strength is fading year on year. Your support will help make every moment count this Christmas...

Watching your child struggling under the enormous pressure of caring for their child can leave grandparents feeling heartbroken and helpless, but Julia's House Great Mates is here to help

When baby Henry was referred to Julia’s House his mum, Harriet, was worried – but she soon realised just how much the support would mean for the whole family.

One-year-old Isabel was born very prematurely and has brain damage , cerebral palsy and epilepsy. Mum Shelley talks about how the worry and exhaustion of looking after her has put a strain on the whole family.

Ben has a rare chromosome disorder which has left him with breathing and feeding difficulties, heart defects, slow growth and poor hearing. No-one knows how long Ben will live. Despite this, he is a wonderfully smiley, cheeky boy.

Lydia, mum to Darcie and Hunter talks about the emotional and logistical nightmare of finding yourself with two children with a life-threatening condition

Maria tells us about her role in being a buddy to the brothers and sisters of the children we support

The Julia's House sibling service is an absolute godsend. It's giving my children the chance to experience a normal childhood when life for them is about as far from normal as it gets. 

Amber gets a few hours of completely undivided attention, from people who are devoted to her. I can honestly say she would be distraught if there was no Julia's House. 

He had numerous invasive tests, MRIs, X-rays, skin and bone biopsies. Positive results that contradicted other tests. Each raising more questions than answers. He had symptoms that were rare but combinations that were unheard of. 

One of the nurses came for a home visit and to have a chat was so helpful. I started to feel very excited about getting some support. The more I heard about Julia’s House the more I thought ‘this is the place for Teyha’

I have learnt to slow down, to be able to give families the time they need and through giving that time really come to know who they are and what they need from Julia’s House