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Real lives, real stories

Real lives, real stories

Abigail's Story
Abigail 14, was born with Holoprosencephaly (HPE), an extremely rare condition which affects just 1 in 170,000 children.
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Josselin’s Story
Josselin doesn’t understand that she needs to close her eyes and go to sleep. She can be awake constantly for three days and three nights and just
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Josh's story
Teenager Josh loves acting and drama - and spending time with friends.
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Ted's Story
When Ted visits the hospice it's his special place, which is huge for a 12-year-old boy - to actually have somewhere to belong.
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Johnathon's story
Johnathon was born with his tummy connected to his lungs. They said, “Don’t expect too much. He’s not going to make it out of NICU.”
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Isla-Rae's story
When I went for my 27 week scan, I could feel something wasn’t right. After scanning me, the consultant said, "We need to get these babies out."
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Tammy, Tehya and Talee's story
Ten-year-old Tehya has a rare genetic condition which affects her growth, her breathing and her muscles. It is thought this may have also been the
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Carmela's story
Lockdown has been a sad time for Carmela, missing her daddy - and her Julia’s House nurses. But now she’s enjoying care again… and some unusual fun
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Reuben and Harry's story
Reuben was born with a condition that causes his brain to slowly deteriorate - it's so rare that they haven't got a name for it yet.
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Aurelia and Aurora's story
The girls have identical heart conditions and they warned us then – as they still warn us now – that they might not live for much longer.
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Ellie's Story
Ellie’s family were torn apart by the devastating news that their beautiful, smiley baby girl had an aggressive brain tumour.
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Darcie and Hunter's Story
When Hunter was born we were devastated. It was obvious straight away he had the same condition as his sister Darcie. It was a huge blow to me and Ben
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William's Story
William was born with the arteries of his heart the wrong way round. It was the beginning of a catastrophic chain of events.
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Our surrogate ‘Big Sister’
Sibling worker Maria loves being a buddy, a confidante and a “big sister” to the brothers and sisters of the children we support.
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Taking the positives from a pandemic
The world went dark for Betty’s parents as she battled a brain tumour. Now she’s in remission they feel hopeful, even in the shadow of a pandemic.
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Isabella’s Story
Little Isabella has chronic lung disease and fights for every breath. She needs a constant supply of oxygen in heavy bottles so going anywhere is a
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Annabelle’s Story
Lively teenager Annabelle is making the most of every precious moment of her life – a life slowly being taken by a cruel and devastating condition.
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Julia's House currently has a CQC 'Outstanding' rating (December 2021), ranking us in the top quartile of all hospices in the UK.

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  • How we support families
    • How we help
      • Care for the child
        • At the hospice
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      • Support for the family
        • Parents and the wider family
        • Siblings
      • Bereavement support
      • End of life care
      • Coronavirus response
      • Equality, Diversity and Inclusion
      • Therapies
        • A big dose of Comfort
        • Our job is child's play
    • Make a referral
      • Getting started
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    • You can help by
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