Annabelle and Robbie’s Story 17 year old Annabelle and her 10 year old brother Robbie have Juvenile Batten Disease – a degenerative and life-limiting neurological condition whichRead more
Diana's Story When my baby sister Gabby was born she soon started having seizures and that’s when we realised she wasn’t a healthy baby.Read more
Abigail's Story Abigail 14, was born with Holoprosencephaly (HPE), an extremely rare condition which affects just 1 in 170,000 children.Read more
Josselin’s Story Josselin doesn’t understand that she needs to close her eyes and go to sleep. She can be awake constantly for three days and three nights and justRead more
Ted's Story When Ted visits the hospice it's his special place, which is huge for a 12-year-old boy - to actually have somewhere to belong.Read more
Johnathon's story Johnathon was born with his tummy connected to his lungs. They said, “Don’t expect too much. He’s not going to make it out of NICU.”Read more
Isla-Rae's story When I went for my 27 week scan, I could feel something wasn’t right. After scanning me, the consultant said, "We need to get these babies out."Read more
Tammy, Tehya and Talee's story Ten-year-old Tehya has a rare genetic condition which affects her growth, her breathing and her muscles. It is thought this may have also been theRead more
Carmela's story Lockdown has been a sad time for Carmela, missing her daddy - and her Julia’s House nurses. But now she’s enjoying care again… and some unusual funRead more
Reuben and Harry's story Reuben was born with a condition that causes his brain to slowly deteriorate - it's so rare that they haven't got a name for it yet.Read more
Aurelia and Aurora's story The girls have identical heart conditions and they warned us then – as they still warn us now – that they might not live for much longer.Read more
Ellie's Story Ellie’s family were torn apart by the devastating news that their beautiful, smiley baby girl had an aggressive brain tumour.Read more
Darcie and Hunter's Story When Hunter was born we were devastated. It was obvious straight away he had the same condition as his sister Darcie. It was a huge blow to me and BenRead more
William's Story William was born with the arteries of his heart the wrong way round. It was the beginning of a catastrophic chain of events.Read more
Our surrogate ‘Big Sister’ Sibling worker Maria loves being a buddy, a confidante and a “big sister” to the brothers and sisters of the children we support.Read more
Taking the positives from a pandemic The world went dark for Betty’s parents as she battled a brain tumour. Now she’s in remission they feel hopeful, even in the shadow of a pandemic.Read more
Isabella’s Story Little Isabella has chronic lung disease and fights for every breath. She needs a constant supply of oxygen in heavy bottles so going anywhere is aRead more
Annabelle’s Story Lively teenager Annabelle is making the most of every precious moment of her life – a life slowly being taken by a cruel and devastating condition.Read more