Real lives, real stories

Jack has cerebral palsy and has always had seizures every couple of weeks, but he started having one a week and the seizures were lasting longer and longer. Mum Hayley talks about their Julia's House journey

Seven-year-old William was born with the main arteries of his heart the wrong way round. He had open heart surgery at a week old which led to a catastrophic chain of events for his family. 

Time for Carmela is precious, she has an aggressive rare form of Muscular Dystrophy. Her muscles are weak and her strength is fading year on year. Your support will help make every moment count this Christmas...

Watching your child struggling under the enormous pressure of caring for their child can leave grandparents feeling heartbroken and helpless, but Julia's House Great Mates is here to help

When baby Henry was referred to Julia’s House his mum, Harriet, was worried – but she soon realised just how much the support would mean for the whole family.

One-year-old Isabel was born very prematurely and has brain damage, cerebral palsy and epilepsy. Mum Shelley talks about how the worry and exhaustion of looking after her has put a strain on the whole family.

Ben has a rare chromosome disorder which has left him with breathing and feeding difficulties, heart defects, slow growth and poor hearing. No-one knows how long Ben will live. Despite this, he is a wonderfully smiley, cheeky boy.

Lydia, mum to Darcie and Hunter talks about the emotional and logistical nightmare of finding yourself with two children with a life-threatening condition

Maria tells us about her role in being a buddy to the brothers and sisters of the children we support

The Julia's House sibling service is an absolute godsend. It's giving my children the chance to experience a normal childhood when life for them is about as far from normal as it gets. 

I have learnt to slow down, to be able to give families the time they need and through giving that time really come to know who they are and what they need from Julia’s House