When Hunter was born we were devastated. It was obvious straight away he had the same condition as his sister Darcie. It was a huge blow to me and Ben because we had thought, had hoped, that Darcie’s condition was just a fluke, just one of those things. I was a complete mess and couldn’t stop crying.

Darcie has vocal cord paralysis and has a tracheotomy – a tube through her neck into her throat - to keep her airway open. Without it, Darcie panics which makes her breathing worse – a bit like when someone has an asthma attack.

Hunter was wheezing away, fighting for every breath. He ended up having a tracheotomy when he three and a half months old.