Teenager Josh loves acting and drama - and spending time with friends. But life can be tough when you have a life-threatening condition that separates you from your peers…

Josh loves music and theatre and acting –putting on a show – he is so full of life and yet has to take life easy,  go steady, which is really hard on him.

It is a miracle that Josh is here at all.  A scan while I was pregnant revealed that he had a hole in his heart and I was offered a termination. He was not expected to survive birth, let along reach his teenage years.

Josh has what’s known as hand and heart syndrome. He was born with the tubes to his heart and lungs the wrong way round so no oxygen was going to his right lung. He also had a bone missing in his left arm and a club hand.