"I thought this was going to be the last picture of them together." Jenna, Ellie's mum.

This photo of Ellie and her big brother, Tom, was taken the day before her operation and for a long time we could not look at it because it was too raw and full of emotion.

We were all there – me, Luke, Tom, the grandparents and as we were about to say our goodbyes I asked Tom to go and stand by Ellie’s hospital bed for a moment. Nothing was said but everyone in that room knew why I wanted to take a photograph.