The two halves of Abigail’s brain didn't separate properly while I was pregnant with her. There's no underlying cause for it, and nobody could have predicted it. It was just that a gene mutated and got copied incorrectly.

Abigail was born with an extremely rare condition which affects just 1 in 170,000 children. Of these children, sadly 95 per cent will die within the first few weeks of life. She is age 14 now.

The first thing we noticed when Abigail was born was that she had a very small head. The doctors then found that she had a tongue tie and cleft palate, so sent her for further scans and investigations. She was two and a half weeks old when we found out she has Holoprosencephaly (HPE).