William (8) has a rare neurological condition called Pelizaeus Merzbacher Disease (PMD) - signals to and from his brain get confused impacting William’s mobility, brain function and spinal cord.
“William makes noises to communicate, but his default setting is to giggle,” shares dad, Will.
William is regularly in hospital and has undergone various operations. He is visually impaired, can’t lift his head and is fed via a tube into his tummy. And because he can’t speak or alert attention with his movements, William must be monitored 24/7 for the subtle signs of an oncoming seizure. William is susceptible to infections - simple colds can make him quite unwell.
