Finley's Mum, Gemma, shares her family's story.

“The point that changed our lives forever was when Finley had his tracheostomy. It’s the tracheostomy that makes him a disabled child.  It comes with so many implications that we couldn’t have even dreamed of at the time, we had no idea. At the time when you’re in hospital, your focus is completely on keeping your child alive and you battle through each day, you just can’t even imagine what the future is going to look like.”