Chris Jerram is a parent trustee and dad to three children. Julia’s House has been a lifeline to his son Noah (and his whole family) since 2018 and he was very happy to take up the position of parent trustee at the end of 2023.  
 
Professionally, Chris works as a Digital Product owner for a Telecoms company and has worked within Telecommunications for the last 30 years, based at home (or hospitals) during these years.
 
Chris' son Noah suffers from a defective gene in his brain causing profound learning difficulties and complex epilepsy. At about age seven, his seizures began, mild at first but despite a complex drug regime, over the years becoming more and more aggressive. He has undergone surgeries in Southampton and later Bristol for an emergency Corpus Callosotomy, an operation to separate the 2 hemispheres of the brain in order to control the most dangerous of the seizures.  For now, the seizures are under control and less frequent, but only time will tell whether this operation proves to be effective in preventing major events.

"Over the years Julia’s House has been there for Noah, with support, advice, laughter and friendship. It has been a hard road but made so much easier by having Julia’s House at our side. I understand the pressures, stresses, and uncertainties that parents face in having a child (or sibling) with a life limiting condition. I equally know how important it is to have a champion like Julia’s House fighting alongside you on the journey.”

Chris Jerram