Please will you help us be there for Drae and his family, every step of the way?
At just 12 weeks-old, Drae was diagnosed with TBCK syndrome - an incredibly rare and complex neurogenetic disorder.
Sadly, few children with TBCK syndrome reach their adult years. The type of stress this will place on any family is enormous, with parents having no choice but to put their own needs on hold to care for the fragile child.
This is where your support becomes an absolute lifeline for parents like Drae’s, as it can often mean the difference between crumbling and carrying on.
Your generous gift will allow parents like Drae’s the chance to rest and recharge, connect with each other, and spend quality time with their other children. This respite care is vital to their wellbeing and is only possible thanks to your wonderful generosity.