Beginning in Dorset as a community-led service in 2003, Julia’s House soon became established as an award-winning care providing charity. A few years later, Salisbury District Hospital identified a need for flexible care for children with a terminal oncology diagnosis. Julia’s House responded by trialling a small community-based children’s care service in Wiltshire. One of the original two nurses in this Wiltshire pilot was Claire Hudson-Cooper, who is now the Director of Care for Julia’s House.
The number of families that responded to the trial far exceeded expectations, and our care provision in the county soon grew in response to demand. With an outpouring of support and generosity from the local community and beyond, we opened our purpose-built children’s hospice in Devizes in 2017.
And today we provide our outstanding care for families across the county – from Salisbury to Swindon – with numbers increasing year on year.
For the families that we care for, every goodbye or kiss goodnight could be the last. Our nurses and carers give families the chance to make lasting memories, help them to get through moments of despair, and make the time they have together the best that it can be.
Each hour of clinical, emotional and practical care we provide helps families to feel less isolated and exhausted, and relieves the ongoing pressure of providing round the clock care for a child with complex needs – the kind of pressure that can lead a family to breaking point.
And when a child dies, our nurses and carers continue to be there side-by-side with families. We provide the end of life care families want for their child, and help them to navigate the grief and trauma of the unthinkable in the years that follow.
We want to be there for every seriously ill child and family that needs us. But we can only do that with your support. We can only care for them if we care together.
We've launched the Together We Care Appeal in a bid to raise the £1.5m needed each year to provide a lifeline of care for the most seriously ill children and their families in Wiltshire.
Julia’s House relies almost entirely on public donations, but we are currently raising £1m less in Wiltshire than we need to run our critical service throughout the county each year.
The number of babies, children and young people living with life-limiting conditions has trebled in England over the past two decades to around 87,000. This means there are more children in Wiltshire needing our specialist care than ever before. And due to continuing medical and scientific advances and increased life expectancy, it’s expected that number will continue to rise by 10% by 2030.
Every child referred to Julia’s House has a life-limiting or life-threatening condition, which means there is no reasonable cure for their condition and they are sadly not expected to live beyond early adulthood. These children need 24 hour care for their complex and often rare medical conditions.
Julia's House has a dedicated team of children's nurses, carers, therapists and support workers to provide tailored support for families across Wiltshire and Dorset. Each family receives at least 200 hours of care annually to use however and wherever they need it most. Crucially, Julia’s House supports the whole family and not just the seriously ill child, offering emotional and practical support and essential respite breaks to parents, grandparents and siblings.
Our children's hospice care is planned around the individual child's needs. Our focus is always on what a child can do – smiles, laughter, making friends and sharing achievements, no matter how big or small.