Rachel was born with a life-threatening heart condition and has spent more than two years of her life in hospital, in intensive care or high dependency units. At one point she was in hospital for seven months, fighting for her life.

She had her first operation when she was four months old and strong enough to cope with open heart surgery. Every time she goes for a check-up the doctors say it is a miracle she is still alive. The reality is, though, shes not expected to make puberty. It is just too sad; we try not to think about it.