How home support is changing life for Isabella and her mum

From the minute she was born she was underweight and struggled to feed. She used to go blue and start to cry. Then when she was two-and-a-half months old she stopped drinking and lost a huge amount of weight – she was just skin and bone.

The doctors and health visitors were worried but no-one could work out what was wrong and I felt really frustrated because nothing was being done, first the doctors thought it was reflux and then they thought she might have a chest infection. She looked awful, she was so thin.

A week later she suddenly turned blue and stopped breathing for a few seconds. I felt really, really panicky. She ended up in hospital and was there for months having all sorts of tests. Eventually they put a camera into her lungs and thats when they discovered things werent right, she had chronic lung disease.