Two years ago our beautiful seven-month-old baby was diagnosed with a highly aggressive brain tumour and our world turned into a living nightmare. There aren’t words to describe what we have been through as a family, other than horrific.

She underwent 10 months of gruelling treatment: brain surgery, intense chemotherapy and radiotherapy, and now for just over a year – we've been at home and Betty has finished a year of preventative oral chemotherapy.

The day the letter arrived to tell us to stay at home as Betty was so vulnerable was quite scary. We were in lockdown about a week before the rest of the country out of choice and we have missed the great support we normally receive from family and friends, particularly from Bettys grandparents.