More than just nursing
Julia’s House offers the most fantastic programme of events, trips and treats for siblings of poorly children. Many of our children would love to do what their siblings are doing, so we are exploring more and more ways to help them achieve this.
Crabbing, kayaking, cinema outings – almost anything is possible with careful planning, a skilled team and lots and lots of risk assessment. When the children get excited it just makes me want to try even harder to make these dreams a reality.
We have a group of older boys who have Duchenne’s muscular dystrophy, a devastating muscle wasting condition. They get together for activity sessions but also for days out – the Julia’s House care team are determined the boys should not miss out.
Film trips, Mexican food nights, a Harry Potter themed sleepover, X-box games, film-making and water balloon fights are among the activities the boys have enjoyed. They get to choose what they would like to do so everything is tailored around them.
If you are in a wheelchair not only is getting out an about difficult, but when you do you can find people looking at you because you are different.
It’s great being able to take out a group of young people – all in wheelchairs – for a VIP day and watch them enjoy a shared experience. They are a gang, a crew, all in it together – no longer feeling awkward about being the only person in a wheelchair. You can see them growing in confidence.
I just love planning those days, those experiences and being able to share special times with children and families.