Real lives, real stories

Read our Julia's House stories to meet some of our families and the nurses
and carers who support them

Jonathon's Story

Jonathon was born with CHARGE Syndrome, a rare genetic disorder that affects multiple organs including sight, hearing and heart. Here his parents talk about their battle to get the very best care for their son…  

Continue reading

Ollie's story

Julia’s House has given us so much support, so much love - there has always been someone to talk to, someone who will listen when we have been through some dark times.

Continue reading

What it's like to be a Sibling Worker

Maria tells us about her role in being a buddy to the brothers and sisters of the children we support

Continue reading

Reuben's story

The Julia's House sibling service is an absolute godsend. It's giving my children the chance to experience a normal childhood when life for them is about as far from normal as it gets. 

Continue reading

Amber's story

Amber gets a few hours of completely undivided attention, from people who are devoted to her. I can honestly say she would be distraught if there was no Julia's House. 

Continue reading

William's Story

You just get over one awful moment and then the next comes along and you go back to being anxious about the future, terrified you are going to lose your child. It's like being stuck on a rollercoaster that you can never get off

Continue reading

Tehya's Story

One of the nurses came for a home visit and to have a chat was so helpful. I started to feel very excited about getting some support. The more I heard about Julia’s House the more I thought ‘this is the place for Teyha’

Continue reading

Leo & Elliott's Story

We thought oh no, we don’t need that – a hospice! But we decided to have a look around anyway and we absolutely loved it. It was literally a house full of toys and fun, just like a proper family home

Continue reading

Sophia's Story

We very much felt we were having to cope on our own with a severely disabled child with a life-threatening condition. Beyond the medical help there did not seem to be much support. The stress was really starting to take its toll on our family

Continue reading

Your donation will help offer support and care to families with a seriously ill child and make their lives as enjoyable as possible.

Make a donation
Verified by Visa logo MasterCard SecureCode logo 3D Secure logo Fundraising Regulator logo