Real lives, real stories

Meet some of the families and the nurses
and carers who support them

Eiden's Story

He had numerous invasive tests, MRIs, X-rays, skin and bone biopsies. Positive results that contradicted other tests. Each raising more questions than answers. He had symptoms that were rare but combinations that were unheard of. 

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William's Story

You just get over one awful moment and then the next comes along and you go back to being anxious about the future, terrified you are going to lose your child. It's like being stuck on a rollercoaster that you can never get off

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Tehya's Story

One of the nurses came for a home visit and to have a chat was so helpful. I started to feel very excited about getting some support. The more I heard about Julia’s House the more I thought ‘this is the place for Teyha’

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A Nurse's View: Kate Bath

Being a Julia’s House nurse is a bit like being a cross between a childminder and a paramedic! We have lots of fun playing and caring for children – but we have to be ready for absolutely anything

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Leo & Elliott's Story

We thought oh no, we don’t need that – a hospice! But we decided to have a look around anyway and we absolutely loved it. It was literally a house full of toys and fun, just like a proper family home

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Sophia's Story

We very much felt we were having to cope on our own with a severely disabled child with a life-threatening condition. Beyond the medical help there did not seem to be much support. The stress was really starting to take its toll on our family

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A Nurse's View: Lisa Everall

I have learnt to slow down, to be able to give families the time they need and through giving that time really come to know who they are and what they need from Julia’s House

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