Real lives, real stories

Read our Julia's House stories to meet some of our families and the nurses
and carers who support them

Darcie and Hunter's Story

Lydia, mum to Darcie and Hunter talks about the emotional and logistical nightmare of finding yourself with two children with a life-threatening condition

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Johnathon's Story

Johnathon was born with CHARGE Syndrome, a rare genetic disorder that affects multiple organs including sight, hearing and heart. Here his parents talk about their battle to get the very best care for their son…  

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Ollie's story

Julia’s House has given us so much support, so much love - there has always been someone to talk to, someone who will listen when we have been through some dark times.

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What it's like to be a Sibling Worker

Maria tells us about her role in being a buddy to the brothers and sisters of the children we support

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Reuben's story

The Julia's House sibling service is an absolute godsend. It's giving my children the chance to experience a normal childhood when life for them is about as far from normal as it gets. 

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Amber's story

Amber gets a few hours of completely undivided attention, from people who are devoted to her. I can honestly say she would be distraught if there was no Julia's House. 

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