Hope has an older brother called Sam, who sadly died just 16 hours after he was born on Christmas Day.
Hope was born with a rare and life-limiting mitochondrial disease that means she is unlikely to ever talk or walk by herself, and is registered blind. The hospital consultant said it was the unlucky lottery of life – to have two children with two completely unrelated, rare conditions.
"Hope is 16 years old and when she stayed overnight at Julia’s House, that was mine and Chris’ second night together ever away from her in her whole life, which is crazy when you think about it. But we just don’t have those opportunities with people who can look after Hope." - Hope's Mum, Caroline
