Real lives, real stories

Read our Julia's House stories to meet some of our families and the nurses
and carers who support them

Isabella's Story

Isabella has chronic lung disease and has to be on oxygen. She has tubes into her nose and these are attached to an oxygen canister – she struggles to breathe without it.

Continue reading

Jack's Story

Jack has cerebral palsy and has always had seizures every couple of weeks, but he started having one a week and the seizures were lasting longer and longer. Mum Hayley talks about their Julia's House journey

Continue reading

William's Story

Seven-year-old William was born with the main arteries of his heart the wrong way round. He had open heart surgery at a week old which led to a catastrophic chain of events for his family. 

Continue reading

Carmela's Story

Time for Carmela is precious, she has an aggressive rare form of Muscular Dystrophy. Her muscles are weak and her strength is fading year on year. Your support will help make every moment count this Christmas...

Continue reading

A Grand Scheme

Watching your child struggling under the enormous pressure of caring for their child can leave grandparents feeling heartbroken and helpless, but Julia's House Great Mates is here to help

Continue reading

Henry's Story

When baby Henry was referred to Julia’s House his mum, Harriet, was worried – but she soon realised just how much the support would mean for the whole family.

Continue reading

Isabel's Story

One-year-old Isabel was born very prematurely and has brain damage, cerebral palsy and epilepsy. Mum Shelley talks about how the worry and exhaustion of looking after her has put a strain on the whole family.


Continue reading

Ben's Story

Ben has a rare chromosome disorder which has left him with breathing and feeding difficulties, heart defects, slow growth and poor hearing. No-one knows how long Ben will live. Despite this, he is a wonderfully smiley, cheeky boy.

Continue reading

Darcie and Hunter's Story

Lydia, mum to Darcie and Hunter talks about the emotional and logistical nightmare of finding yourself with two children with a life-threatening condition

Continue reading

What it's like to be a Sibling Worker

Maria tells us about her role in being a buddy to the brothers and sisters of the children we support

Continue reading

Reuben's story

The Julia's House sibling service is an absolute godsend. It's giving my children the chance to experience a normal childhood when life for them is about as far from normal as it gets. 

Continue reading

A Nurse's View: Lisa Everall

I have learnt to slow down, to be able to give families the time they need and through giving that time really come to know who they are and what they need from Julia’s House

Continue reading

Your donation will help offer support and care to families with a seriously ill child and make their lives as enjoyable as possible.

Make a donation
Verified by Visa logo MasterCard SecureCode logo 3D Secure logo Fundraising Regulator logo