Our respite care means so much to parents who are looking after a very sick child 24 hours a day. It gives them time out with their partners, their other children or simply a chance to catch up with some day-to-day tasks, safe in the knowledge their child is being looked after by people they know and trust. Children's hospice care provides day and occasional overnight care in a safe and homely environment. The children who come here enjoy a genuine quality of life.
Specialist activity and play sessions and even sleepovers are a wonderful way to enable every child to have an enjoyable experience at the hospice. It also means that if the worst happens, the hospice is not an unfamiliar environment for families to spend time in but somewhere happy memories have been made. Our children's hospice care is planned around the individual child's needs with the emphasis on having fun. All children who come to Julia’s House have a chance to make friends and share happy times together.
Anyone thinking of becoming a paediatric nurse or changing jobs should not be put off by the idea that Julia’s House is a scary place. Coping with the death of a child is the part of the job everyone focuses on and yet there is so, so much more to being a Julia’s House nurse.
One of the nurses came for a home visit and to have a chat was so helpful. I started to feel very excited about getting some support. The more I heard about Julia’s House the more I thought ‘this is the place for Teyha’
"I want parents to know all is not lost. With the right support they can still have a good family life. And that's at the heart of Julia's House."
Lynda, Julia's House specialist neonatal nurse